Von Willebrand Disease (VWD)
“Together we can make sure that every individual living with VWD, or living with someone impacted by VWD, is supported to live long, happy, healthy lives.”
Disease-based
About Von Willebrand Disease
The Von Willebrand Disease (VWD) Committee was set up as a working group in 2020 to lead the ‘EHC VWD Platform for Europe.’ This platform promotes the formation of a European community of people with von Willebrand Disease (PwVWD) enabling them to find support and ‘identity’ while also promoting, building, and maintaining a network of European VWD advocates. The working group was transformed into a committee in 2023 which reflects its evolution and development over the past three years.
The Committee aims to increase and improve diagnosis and treatment options nationally and enable those VWD advocates to work at the European level and with other European partners towards improving access to treatment and care for all PwVWD.
To get in touch with the EHC VWD Committee: [email protected] or contact Zita Gacser, Community and Projects Lead. Reach out to us also if you want to join our WhatsApp support group (open to VWD patients only!).
#VWDunited #VWDtogethere #beVWDaware
VWD Committee Members
UK NMO
Joanne Traunter
Committee Co-Chair
Austrian NMO
Julia Rauscher
Committee Co-Chair
Dutch NMO
Cathy Verbraeken
Committee Member
Turkish NMO
Başak Koç Şenol
Committee Member
German NMO
Lena Steinbrecher
Committee Member
Spanish NMO
Laura Quintas Lorenzo
EHC Steering Committee Liaison
VWD children’s book “Emma and the Playhouse”
Materials
